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bloggers corner

Are you a blogger? Reader of blogs? Here's how you can help: 
  • Write about us on your blog: Help spread the word about Benjy's fight.
     
  • Talk about us on other blogs: Visit Technorati.com (a blog search engine), and look for appropriate places to talk about us (search for keywords like "Aetna", "Tay Sachs", etc.).  

 

Thank you for helping support Benjy's fight, and for helping in our effort to get Aetna to do the right thing.  

Please keep helping by spreading the word:

 

  • Tell friends about this effort.  You can cut and paste the "tell a friend" text in the box below, or write your own.
  • Spread the word in blogs (see "bloggers corner" above)
  • Know any reporters?  Tell them to cover the story, and send them to our media contact page
  • Donate to Benjy's family to help with medical expenses

Regards,

Benjy's Angels

"Tell a friend" text:  Please cut and paste this and send it to friends.  Or write your own.

I am helping to start a movement on behalf of a 2-year boy who is fighting for his life.  Please take a minute, visit www.DearAetna.org, and help me.

In March, 2005, Benjamin Vincent Margulies was diagnosed with Tay Sachs -- a disease that had historically been 100% fatal. The family was stunned and completely devastated. Then a ray of hope appeared - Benjy's parents (Elizabeth and Josh Margulies) found Dr. Joanne Kurtzberg, a world-renowned physician who was pioneering the use of stem cell therapy (using cord blood) to treat children with Tay Sachs and related metabolic diseases. 

Benjy underwent weeks of grueling exams and tests to determine his candidacy for the transplant. Once Benjy was deemed a good candidate, Aetna gave them the go-ahead -- agreeing to pay for the treatment. The family was ecstatic, and publicly praised Aetna.

Benjy spent many months in the hospital following the initial treatment, an extremely difficult procedure that included chemotherapy. But in the end, it was worth it. Benjy not only halted the progress of the disease -- he began to reverse its impact. Through months of physical, speech and occupational therapy, he began to start showing great progress. 

Suddenly, in the spring of 2006, lower level Aetna officials advised the family that they would no longer pay for Benjy's nurse or therapists. An initial appeal was denied by a panel whose members apparently know little about the new, successful treatments. To make matters worse, the same day the appeal was denied, Elizabeth received notice that Aetna had actually decided to increase her monthly health premium. 

Aetna is now reviewing this decision at highest level. Please take a minute, and help Benjy by visiting www.DearAetna.org, and writing a letter to Ronald A. Williams, the President and CEO of Aetna. Thank him for agreeing to review this -- and ask Mr. Williams to do the right thing, and reverse the earlier decision. Ask Mr. Williams to stand by Aetna's "Legacy of Caring." 

Ask Mr. Williams: Don't Abandon Benjy.