***Alert: Aetna agrees to do the right thing. Read NY Times piece 

***Donations still welcome to help cover other expenses. Help Benjy's family by donating here. 

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"Dear Aetna: Don't abandon Benjy"

In March, 2005, Benjy (Benjamin Vincent Margulies) was diagnosed with Tay Sachs -- a disease that had historically been 100% fatal. The family was stunned and completely devastated. Then a ray of hope appeared - Benjy's parents (Elizabeth and Josh Margulies) found Dr. Joanne Kurtzberg, a world-renowned physician who was  pioneering the use of stem cell therapy (using cord blood) to treat children with Tay Sachs and related metabolic diseases.

Suddenly, in the spring of 2006, lower level Aetna officials advised the family that they would no longer pay for Benjy's nurse or therapists. An initial appeal was denied by a panel whose members apparently know little about the new, successful treatments.  To make matters worse, the same day the appeal was denied, Elizabeth received notice that Aetna had actually decided to increase her monthly health premium. 

Aetna is now reviewing this decision at highest level. Please take a minute, and help Benjy by writing a letter to Ronald A. Williams, the President and CEO of Aetna.  Thank him for agreeing to review this -- and ask Mr. Williams to do the right thing, and reverse the earlier decision.  Ask Mr. Williams to stand by Aetna's "Legacy of Caring." 

Ask Mr. Williams: Don't Abandon Benjy.